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susanwy Donating Member (461 posts) Send PM | Profile | Ignore Thu Nov-19-09 10:12 PM
Original message
Health care story and request for advice
I paid my dues so I could post this story. I've been lurking again since the election because I have not had the time or energy to spar with DU. This story is about my husband's brothers family.

My SIL was diagnosed with breast cancer over six years ago. Her dr ordered routine mamos at 35 because of family history, and she was diagnosed at 37 - KEEP OUR MAMOS, but I digress. At the time she had crappy health insurance and a crappy job where the boss was awful to her during her treatment. They were already in debt due to the birth of her twins, one of whom had severe lung problems at birth (neither had health insurance - because my BIL was laid off during the pregnancy and they could not afford COBRA). My nephews were 5 when she went through a double mastectomy, chemo and radiation. Then they lost their health insurance again because my SIL was laid off. My BIL had a new job but there was a waiting period to get on his new job policy, plus a preexisting condition clause. Shortly after, my BIL slipped a disk in his back and had to have back surgery (before he was covered). So, in 10 years they had three family health emergencies and only had insurance during one of them, needless to say, they owed their soul to local Doctors and Hospitals.

After 10 years of massive debt due to all the uncovered and under covered care this family needed, we finally talked them into filing for bankruptcy. My BIL, in that time, went back to school and became a nurse so he would no longer have to break his back (literally) to support the family. Things were finally looking up, the kids and SIL were healthy, BIL was earning good money, SIL was back to work and they actually had enough $$ to look at a new car to replace the beater they had shared for years. I can't remember them every having a real vacation and we were talking about doing something together.

Of course, it was too good to be true, and this summer my SIL's breast cancer returned. It has metastasized to her bones and they give her 6 months to 2 years to live. She is on a morphine pump and trying desperately to still work. Thank the gods that this time she has a boss who is a saint, he lost his wife to breast cancer and has told my SIL that he will keep her on his small business insurance until her death, all she has to do is pretend to work. They will have all the co-pays, deductibles and out of pocket (not to mention the drug bill, that is the worst). In the end she will die and my BIL will be left with my precious 11 year old nephews and a mountain of debt again (and of course he can't file for bankruptcy again). We have offered what help we can, but they are too proud to accept our money (not that we have a lot, but we do ok).

Now, I've had my share of health care issues over the years, including dealing with Lupus since 1998. But, I've always had good health insurance. I'd give up the tax free premiums, medical reimbursement and pay higher drug costs if it would keep families like my BIL and SIL from going through what they have gone through. WE NEED SINGLE PAYER, but I still reluctantly support the bills working through congress because we have to start somewhere. Although, if I were president I would have broken this into two bills - one to reform the awful practices insurance companies engage in and another for medicare for all.

ADVISE PLEASE - my BIL and SIL have never had a real vacation. I've lost two friends to cancer this year and both went on one or two week dream vacations with family before they were too weak to enjoy the trip. At the funerals the families told me they wouldn't trade those trips for anything (other than their loved one's lives back). They were able to say all they wanted to say and laugh and cry together. I want to send my SIL and her family on a cruise and give them the tickets for Christmas, but I don't know where to start (because I don't travel much). I can't afford to send my husband and our family with them, or her siblings or parents, nor do I even know how to get a hold of them to see if they would want to go.

What are good Alaska cruises? When is the best time to go (in the next few months)? If not Alaska, then tropical... I just don't want to wait too long. My SIL loves wolves and Alaska and mountains and whales....plus I know that when I went through chemo treatments for my Lupus, I hated the heat. So, I think north would be better than tropical, but time may dictate that decision.

Can I get an "open" ticket so they can decided the dates? They could then invite other family that can pay their own way.
Are there any charities that might be able to help me? Do any of the cruise companies offer deals in situations like this?
I can afford two to three thousand $$ to set this up, but that is about it for my budget.

Sigh, this is all so damn sad...plus, we found out from them literally on the way to our dream vacation in Hawaii this summer. I should have just racked up the CC and found a way to have them join us .... I feel very guilty.

Susan
:cry:
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nadinbrzezinski Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Nov-19-09 10:22 PM
Response to Original message
1. Susan we did the Alaska Cruise in July
and it is definitely worth it.

They will need to take warm clothes anyway, but the place is amazing. We used Celebrity Cruise.

And don't feel guilty, we do not know what comes to us and what does not...

Now if I remember, Celebrity had the inner cabins, for somewhat cheap... so that may be best budget wise. Realize it is the tours that get expensive, as well as some services on board. but the food is inclusive.

Let me see

http://www.celebritycruises.com/destinations/home.do;jsessionid=0000S54ZoZQxe_PqpP7WjYeLG9q:12hdbcuh7?dest=ALCAN

In their case they will need a US Passport since they tend to stop at one Canadian port or leave from a Canadian port, but leaving from Seattle might be best.
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roguevalley Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 11:28 PM
Response to Reply #1
17. first of all, I am terribly sorry for this. there are no words that express
how awful I feel for you and your family. Does make a wish help adults? Call them. Maybe they know people who do things. The cruises to alaska are awesome. Take care honey.
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OhioBlue Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Nov-19-09 10:29 PM
Response to Original message
2. Susan, I am so sorry to hear about your sister-in-law's
situation. I am sorry that I don't have any good advice - but maybe you could call your local Hospice and see if they might now of a good charity to help. I think there is an "Angel Foundation" or something like that I have heard of that grants such wishes, but I have no experience with them.

:hug:
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izquierdista Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Nov-19-09 10:44 PM
Response to Original message
3. Alaska is a summer cruise
Winter would be miserable with the storms. You should try a Mexico cruise out of San Diego. Winter is the time for grey whale watching, and Baja has some impressive mountains rising up out of the sea. Plus the Pacific does not get tropical type hot until you get south of Mazatlan this time of year.
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susanwy Donating Member (461 posts) Send PM | Profile | Ignore Thu Nov-19-09 11:16 PM
Response to Reply #3
5. Thanks!
That is what I figured already, while they may prefer Alaska, there may not be the time. That is why I wish I could get some kind of open ticket...You just never know, she could be ok for a couple of years, or not. Very similar to Elizabeth Edwards (only they don't have the money to ease some of the stress). I bought here both of Elizabeth Edward's books when she was re-diagnosed, hoping she would get some inspiration from another courageous woman.
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SheilaT Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Nov-19-09 11:16 PM
Response to Original message
4. How generous and thoughtful of you.
If your SIL's time is really as limited as you think it may be, waiting seven months for good enough weather for an Alaska cruise may not be a hot idea.

Some years back I had a travel agency send me brochures about cruising on small ships. And I mean small, no more than 30-50 passengers each. Do a google search and you'll find them. They have wonderful itineraries and can go into harbors and close to shores that the big cruise ships can only dream about. Naturally there are far fewer amenities on the small ships, so that will be a major consideration.

I've never been on a cruise, although I've always wanted to. I'm sure others here will have some very specific suggestions.
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Kali Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 12:01 PM
Response to Original message
6. I don't have any advice but I will gladly kick this for you.
Edited on Fri Nov-20-09 12:02 PM by Kali
You are doing a really nice thing - do it soon, though. I lost my Mom from the same.
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PatSeg Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 12:47 PM
Response to Original message
7. I don't know much about cruises
but wanted to give this a kick for more exposure. Your brother-in-law and sister-in-law are so fortunate to have such caring relatives. Be sure to let us know what you decide.

I was so touched by your SIL's boss. Such compassion seems to be rare these days and it is inspiring to hear it still exists.

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inna Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 12:55 PM
Response to Reply #7
8. ditto.

Rec, and another kick for the OP.
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Contrary1 Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 01:02 PM
Response to Original message
9. Hi Sweetie,
Edited on Fri Nov-20-09 01:53 PM by Contrary1
I am so sorry to hear all of this. These stories always catch my breath. I just shake my head and wonder why one family should have to go through so much tragedy.

When I was diagnosed with breast cancer, my wonderful co-workers all got together and gave me a gift certificate to a travel agency. Somehow, they managed to collect $2,500. toward the certificate. I still don't know how they were able to get this done without my catching on. They specified to the agency that it must not have an expiration date.

My husband and I took a cruise to the Bahamas. It was wonderful. Even better, was that there was a balance left on the certificate that I was able to use to help pay for my daughter's honeymoon.

Anyway, my suggestion would be to talk to a reputable travel agency. Many times they can find deals that are not available to the general public. Explain the situation to them. Make sure you specify the no expiration part. See what happens, you might be surprised.

Good luck to you and your family. :pals:
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PatSeg Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 01:27 PM
Response to Reply #9
11. It is so refreshing to hear such positive stories
It is nice to know there is still some compassion in the world.
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Vinca Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 01:04 PM
Response to Original message
10. You might want to feel them out about the cruise before investing in it.
Your offer is so sweet and generous, but I think of myself and I couldn't accept a cruise vacation because I'd spend the entire time throwing up. Just a thought. Wow - you're really a good person.:hug:
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cilla4progress Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 02:41 PM
Response to Original message
12. What a story
Why do some folks have so much grief in their lives. Bless you for doing this for your SIL and family!
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elehhhhna Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 03:03 PM
Response to Original message
13. FYI look for a deal on cruises form Galveston...
flights to Houston are cheap, and the cruises from here are cheap and plentiful -- 4 nights to 10 days.
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Muttocracy Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 07:52 PM
Response to Original message
14. kick for more suggestions and hugs to all your family members
:hug:
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Muttocracy Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Nov-20-09 07:54 PM
Response to Original message
15. and thanks to your SIL's boss for his kind heart. nt
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susanwy Donating Member (461 posts) Send PM | Profile | Ignore Fri Nov-20-09 09:42 PM
Response to Original message
16. Thanks to all
Some good suggestions!

Talked to Bridgette today, they started her on Chemo this week, which means it has spread from bone to soft tissue...may not be able to handle a cruise. I didn't tell her my plans..but I know the toll chemo can take.

I think I'll try a travel agent. We had a good one help us with our Hawaii trip and maybe I can just do an open gift certificate and then they can decide if they want to try a cruise or just fly somewhere nice. My neighbor/friend who passes a couple of months ago went with her family to a rented beach house in Florida (Key West I think)...she said it was quiet and close enough to Disney land where the kids could go and she could get some peace by the ocean.

Susan
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