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PLEASE Help me Spread The Word on WHY WE NEED FED STEM CELL FUNDING

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berni_mccoy Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Nov-05-06 08:20 PM
Original message
PLEASE Help me Spread The Word on WHY WE NEED FED STEM CELL FUNDING
Edited on Sun Nov-05-06 08:25 PM by berni_mccoy
I've heard too many times the argument from the ultra-religious and insane backers of Bush that we are free to fund stem cell research all we want, just don't ask our tax dollars to do. Anyone who makes this claim obviously does not live with a chronic disorder or disease that stem cell research can cure. Like TENS OF MILLIONS of Americans and over 1 BILLION people world wide, I do.

My son was diagnosed with type-1 diabetes nearly two years ago and every day we live with the fact that he must be pricked and injected and ultimately live a shorter life, full of much higher risk for life-threatening complications. We live with very high medical bills despite the fact that I am fortunate enough to have very good medical coverage from my employer. Co-pays and deductibles for regular visits, test strips of various kinds, lancets, infusion sets, syringes, insulin and other supplies and medicines we need for him cost us well over $4000 / year out of pocket. We still find a way to make contributions to the American Diabetes Society and the Juvenile Diabetes Research Foundation totaling well over $1000 / year. Additionally, we walk in the annual JDRF Walk for a Cure and we've averaged raising $4500 / year since we started. From what I understand, my family is above normal on our ability to donate and raise money. Millions of other American families are just like ours... living with high medical expenses and also donating whatever they can scrape up to find a cure. But it isn't enough.

For example, the JDRF is an organization that was founded in 1970 by parents of children with type-1 diabetes, just like me. In those 36 years, JRDF as awarded over $1 billion to research. That's an average of just $27 million a year (last year they raised $122 million).

That $1 billion in research has taken us oh so very far. Needles are thinner, lighter and less intrusive. Checking blood sugar now only takes seconds instead of minutes. Various types of insulin have been developed to minimize the number of shots per day have been developed. And we know today that type-1 is an autoimmune disorder that attacks the insulin producing cells (islet cells) in the pancreas. We've seen successful islet cell transplants in extreme cases. The cases that get transplants must be extreme due to the fact that that the doner-to-recipient ratio for transplant cure is 10-to-1. We've recently seen the disease cured in animals through the use of stem cells. But for the disease to be cured in humans, it will require more than a billion dollars, the total amount of money raised by people like me in the last thirty years. Scientist believe we are within 20 years of a cure, ASSUMING THE FEDERAL GOVERNMENT FUNDS STEM CELL RESEARCH.

So, to those who say, "Fund a cure yourself but not with my taxpayer money..." I say you are being immoral with your selfishness and elitist beliefs and have NO IDEA what people like me live with. WE ARE funding it, but it simply isn't enough. By forcing your beliefs on everyone else, you are withholding great healing that will heal well over a BILLION PEOPLE world-wide, the majority of which do NOT SHARE YOUR BELIEFS. America has GREAT CAPACITY TO FUND THESE CURES. Most of you who claim the moral superiority don't seem to be marching in the street protesting the fact that the government is using your taxpayer money to kill over A HALF A MILLION INNOCENT PEOPLE IN AN ILLEGAL WAR. Where is your outrage there? Imagine how much closer we'd be to curing diseases if we had spent the HUNDREDS OF BILLIONS on the Iraq War on cures for diseases instead.

DUers, I ask simply that you spread this word before election day. Ask those you find opposing stem-cell research to think about their position carefully and consider what I have said.
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Redstone Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Nov-05-06 08:22 PM
Response to Original message
1. You don't have to convince me. I have MS. And I'm damn sorry to hear about
your son. I really am.

Redstone
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Hav Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Nov-05-06 08:29 PM
Response to Original message
2. .
You are so right.
My grandparents have diabetes, my parents have it and as I had way too high results in blood tests when I was a kid, I guess it will hit me sooner or later as well.

Finding lasting real cures might need high funds. On the other side, we also have really high costs as a result of the illnesses and their consequences.
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HuskiesHowls Donating Member (582 posts) Send PM | Profile | Ignore Sun Nov-05-06 08:54 PM
Response to Original message
3. Michael J Fox explained it very well
when he said, in his interview with Katie Couric, that "...the federal government can throw more money at these things by accident than the private sector can on purpose..."

starting at 6 minutes http://www.youtube.com/watch?v=XCa4-vGQQLs&mode=related&search=

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berni_mccoy Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Nov-05-06 10:32 PM
Response to Reply #3
4. And it's true, but opponents have started using the talking point
more and more since Fox's interviews that we are free to spend our own money on it.

I want them to know that we ARE spending our own money on it, what little we have after the medical expenses. There simply isn't enough money to be had from those who have the disease, those who really need and want the research. And such a small percentage of people, who believe they are using their voice, are actually being used by the administration with the political carrot stick on issues such as this.
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Egnever Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 11:37 AM
Response to Reply #3
10. nice quote
I am so glad he didnt let these goofs intimidate him.
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Gelliebeans Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 02:26 AM
Response to Original message
5. I agree 1000%
I have Crohns disease and stem cell research looks so promising for so many people with auto immune diseases also. My family and friends all feel the same way. Federal funding will only push for faster cures and maybe people like us will get to live part of our lives without pain and disease.

I have only had one argument against stem cell research flung at me and it was with a fundy, believe it or not we shared a hospital room at the time.
Needless to say I got to be moved to a private room. She was unbearable and completely insensitive.

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berni_mccoy Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 10:19 AM
Response to Reply #5
6. We will all have to work together
To overcome the ignorance surrounding this issue and act as one supper-lobby to get Congress to make a veto-proof bill that will properly fund Stem Cell Research.
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berni_mccoy Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 10:44 AM
Response to Original message
7. Shameless kick to spread the word
:kick:
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Egnever Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 11:17 AM
Response to Original message
8. Thanks for all your work
My son was diagnosed with type 1 diabetes at 6 months old. If it wasn't for all of the breakthroughs in insulins and delivery systems over the last 20 years I dint know if he would be alive today,or if he was that he would not be suffering brain damage by this point from lows caused by insulin not suited to his small body.

I have been pissed at bush almost from the first day he stole office, However when he used the only Veto of his entire presidency on the Stem cell research bill my disgust with him rose to all new levels.

My father is a life long republican, he has a picture of shrub and pickles on his mantle that i turn upside down every time I go to his house :P I figured when bush pulled this crap that maybe finally we would have some common ground when it came to bush,I have been working on him since bush got in office trying to get him to see the incompetency of this administration, against the backdrop of his daily car rides where his head is filled with rush and hanity it has not been easy. I figured though that surely in this issue that so affects his own grandson we could come to a consensus. When i approached him with this news he said he had been thinking about it for weeks and just wasn't sure,,,,

WTF? you aren't sure? this is the man that has been preaching to me my whole life that genetics control everything in your personal health. He said that he believes in the science but he is also aware that the legislation is being pushed by abortion clinics to make more money on abortions.....Sigh... I blew up and told him he really needs to stop listening to that ass-hat rush limbaugh, and asked him if he really believed that? I mean seriously do you really believe that there are any sane people out there that are trying to increase the numbers of abortions? Thats just plain lunacy. He said he wasn't sure and that no he doesn't necessarily believe it but he had heard that......

Another sort of funny story about a republican friend and this issue, An old high school friend of mine lives in california and was lamenting to me about all the money he would have to pay in taxes to fund stem cell research cause he lived in california and how he would never see anything from that money. Recently a company in California reproduced Islet cells from stem cells, the insulin production of those cells doesn't reach the output of adult islet cells but they do produce all of the different hormones expected from normal islet cells so its a huge step in the right direction.
I called him as soon as i heard about it to thank him for all his tax dollars cause the breakthrough came out of CA and told him to get off his ass and get bush out so we could help pay for this stuff nation wide!

Anyway I just wanted to thank you for the post and send my thoughts your way, Diabetes is a crazy disease one day to the next things change and its always a battle to try to keep it under control; as I am sure you know well, I hope you are wining more battles than you are losing and that your son is as healthy and complication free as is possible. There are a lot of amazing things coming down the pike in the next few years related to diabetes care that will help in those battles but I truly believe that stem cell research will lead us to the eventual cure so we can end this fight permanently.
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berni_mccoy Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 11:36 AM
Response to Reply #8
9. I share your frustrations
I too have family members who are long-time republicans and Bush supporters. The stem-cell issue has given them pause and something to reconsider on the insane approach this administration has taken on every thing. The fact that Congress NEARLY had a veto-proof bill pass on funding stem cell research and Bush vetoed is a major factor in this election.

I am crying as I read your post and think of the things we share. We are almost 2 years after diagnosis and we are still learning every day. It's a radical change in the way you live, especially when you try to minimize the weight your child bears.
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Egnever Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 11:43 AM
Response to Reply #9
11. Not to hijack your thread but.....
Have you spent any time on the ada parents board? My wife and I spend a lot of time on there and it is a great resource for kicking around strategies for maintaining tighter control of this disease. We are in just about the same time frame as you on diagnosis. My son was diagnosed about 18 months ago.Without the help from other parents on that board and all the been there done that experience they shared with us I don't know how we would have survived those first 6 months. Even today almost 2 years later I still learn from that board.

If you haven't looked at it before its worth stopping by.

http://community.diabetes.org/n/pfx/forum.aspx?folderId=1&nav=messages&webtag=adaparents&mode=13
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berni_mccoy Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 02:58 PM
Response to Reply #11
14. Yes, we do go to that board
Yep, finding new techniques to better control blood sugar is always a good thing. It's very easy to feel alone when your child's blood sugar is 250-300 for no apparent reason. Just hearing that you are not the only one in that situation is helpful.

It's a very depressing disease that can suddenly hit you with realized implications late at night when you are feeding your child glucose tabs to correct hypoglycemia at 2am and you realize, not only do you have to wake them up, but keep them up for 15 minutes (at least) and then brush their teeth so they don't get accelerated tooth decay or other dental issues.

We also go to our local support group which is very helpful and informative. It's also amazing that most of our medical staff have type-1 diabetes as well, including our endocrynologist.
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Egnever Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 12:05 PM
Response to Original message
12. one more kick
Cause its time to end this foolishness.
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Gelliebeans Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Nov-06-06 01:06 PM
Response to Original message
13. kick this is a must read!
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