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Ah this auto immmune syndrome sucks

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nadinbrzezinski Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jan-12-10 01:41 AM
Original message
Ah this auto immmune syndrome sucks
so thyroid is mostly dead... and got Diabetes... well on prodding from bro (he is a gastro) and dinner turned to less than palatable subjects for most, got my test for Celiac today. If that comes positive (and I suspect it will due to the last two years and especially the quite on purpose challenge last night) ah well, will have to find gluten free grains. I know Maize and beans work (Ah the glory of the Mexican diet) but will need to figure out things for hubby...

Will look into Quinoa and a few others, including Millet and Amaranth.

Oh and this also means NO matzo for me either...

Lets just say today's meals have not had ONE iota of wheat... and after the challenge last night, I actually feel better now.

No, not crying over spilled milk... just pointing out that things can and do get more... interesting... all the time.

:-)

And it is all attitude... I could be crying I guess. But why? There is much to life... so what if no more paninis? And hubby will get his pasta... he loves it, and I found a place that has fantastic pasta.

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Jennicut Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jan-12-10 10:33 AM
Response to Original message
1. My father in law has Celiac disease and there are some good gluten free recipes out there
Edited on Tue Jan-12-10 10:33 AM by Jennicut
He makes us gluten free chocolate chip cookies every year for Christmas and they are the best though I can't have too many because I am diabetic like you.

I am sorry you have so many immune system issues. I was at my endocrinologist two weeks ago and was told I may be a Type 1 diabetic and not Type 2 after all (after 5 years!). I met with a diabetic nurse to go over proper dosages for short term insulin (having too many lows) and she picked up on the fact that when I was first diagnosed with diabetes my C-peptide test came back very low. I never made much insulin. She wants me to do another one. I was never tested to see if I made antibodies so I need tests for that too. Plus, they put me on insulin very quickly. Diet and meds never worked for me at all. They just assumed I was Type 2. Who knows. I could have LADA. Every day it is something new right? Just have to stay strong and keep going. Hang in there.
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nadinbrzezinski Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Jan-12-10 02:00 PM
Response to Reply #1
2. Well as my doc put it, the thinking is changing
first off diabetes type I and Type II are convenient short hands. Given that they come in varying degrees of aggressiveness, they are starting to sub classify them. As you said, we learn things every day.

But this is classic adult metabolic syndrome... I am just going... what more? Oy.

Now don't get me wrong... no matzoh, I can live with that. I HATE the stuff. It give me tummy aches... which might have been the celiac for years now.

:-)

And now my fundy brother (the other one) can fully stuff it. For a few years when we go visit family we buy "kosher for passover" tortillas, and he literally has a cow. I mean how dare you do that? Well he kind of has a cow when I do not fast for Yom Kippur, and now I get a get out of matzoh free card.

:hi:

As I said, my other choice would be to cry. And I am sure I can find recipes. I found a source for Quinoa and Millet and Amaranth... already.

My local market. First things first, wait for the test result. Doc said that if it borderline she will still order the endoscopy to make sure.

And there are far worst things in life, but when we travel, and we do from time to time, it will make things more ahem... interesting... when we go out for breakfast I am now limited to eggs and potatoes, I can live with that.
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Warpy Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jan-13-10 05:14 PM
Response to Original message
3. Corn pasta exists and isn't terrible.
You can find it in health food stores here in the US

Bread is the toughest one. They're getting better at rice breads, but it's still not bread, although it will keep your hands from getting mayonnaise on them at lunch. I'd honestly rather just adjust seasonings and use corn tortillas.

In the meantime, wait for the diagnosis before you go whole hog on eliminating every scrap of gluten from your diet. Don't trouble trouble before trouble troubles you.

If the worst is true, there are a lot of gluten free sites on the web with great strategies for managing to get enough nutrition in a wheat based culture.
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mopinko Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jan-14-10 11:17 AM
Response to Original message
4. this is one i don't think i could deal with.
although we ought to give it a try, as the baby has chron's and it is helpful to a lot of folks with chron's. but no bread? ugh. i would rather just die.
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greenbriar Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jan-14-10 07:02 PM
Response to Original message
5. Hubby is allergic to wheat and oats. There are a lot of things available
we have even found some gluten free soup. He doesn't have to be totally gluten free, but we have found it easier to follow that route. When this first started many years ago, it was hard to find things, but there are rice and corn pastas and all kinds of breads.

Google Che Be bread.


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greenbriar Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jan-14-10 08:27 PM
Response to Reply #5
6. here is a web site
Edited on Thu Jan-14-10 08:27 PM by greenbriar
http://www.chebe.com



Godfathers also now makes a gluten free pizza
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tavalon Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Jan-17-10 09:52 AM
Response to Original message
7. I'm on year number eight and it's second nature to me now
Gluten Free Mall online is a good resource. If you are a cook, get every cookbook Bette Hagman ever wrote.
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nadinbrzezinski Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jan-28-10 01:30 PM
Response to Reply #7
8. Thanks for the tip
and yes I am a cook.
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