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laylah Donating Member (1000+ posts) Send PM | Profile | Ignore Fri May-20-11 05:22 PM
Original message
I need vibes, prayers, encouragement...
I had lost almost 30# in less than a year. Since last October, I have been trying to find out WHY?

May I preface this with, I am grateful, grateful, GRATEFUL for the community health centers that are out there. May I also say, they are great for colds!

After 6 months, I finally "cast caution to the wind" and went back to my gastro doc, whose "company" had fired me two years ago because I could not afford the copays.

To make a long story short, as we all prefer, I have FINALLY found out the problem...hemochromatosis. A genetically acquired condition. No cure, tx, no guarantee that I will feel much better.

I hurt, am so VERY angry...fatigue is a great part of this disease, tx does not mean relief.

I would appreciate all prayers you may choose to give. I AM PISSED!
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kimmerspixelated Donating Member (1000+ posts) Send PM | Profile | Ignore Fri May-20-11 05:42 PM
Response to Original message
1. Do some research on this.
Before listening to any regular doctor or taking his word as the final word, I mean, consult with a naturopath or see what can be done. Almost everything has to do with an imbalance of sorts. I really think that there is hope with the right diet plan. Also, doesn't giving blood regularly help this condition? Juicing with Barley Grasses will certainly help with the energy, I bet! Good Luck!
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laylah Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-21-11 06:11 AM
Response to Reply #1
2. Good morning, kimmerspixelated...
let me start by apologizing for my angry tone last night, while asking for help, no less! That wasn't cool on any level, and I am sorry.

I am doing research, thank you. So far, I have found I cannot/should not eat a lot of the foods I enjoy. Such as legumes, spinach :cry: , beef, port, or chicken, tuna, just to name a few. This will be life altering for me but I will sail through with flying colors.

Yes, giving blood is part of the tx. I see my doc on Monday and we will hash out a plan then. Depending on the severity, I could have to give 1pt x2 weekly down to as little as 1pt every few weeks.

I will check out the Barley Grass. Thank you!

Thank you for responding. :hug:
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kimmerspixelated Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-21-11 05:11 PM
Response to Reply #2
7. NO need to apologize at all.
You are wonderful and I know you will find the balancing answers and health will be yours. Bless you!
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Celebration Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-21-11 08:16 AM
Response to Original message
3. so, so glad you found the cause!
It is treatable, thankfully. Do look into oral chelating agents. I understand your being pissed, but honestly that could make you grab hold of any iron and not release it. I would suggest looking into EFT to release some of the anger. That could help you with your entire condition.

Releasing anger about any condition is the first step in the healing process.
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laylah Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-21-11 08:32 AM
Response to Reply #3
4. Thank you,
Celebration.

I am not, by nature, an angry person but these past few weeks have certainly changed that! Yesterday was the icing on my cake.

I will look into the oral chelating agents, as well as EFT.

Again, thank you. :hug:
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Celebration Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-21-11 01:38 PM
Response to Reply #4
5. honestly I think you will feel a lot better soon
And the condition itself, physiologically, can cause the mind to feel distress. Once you start getting treatment, you will more easily be able to release the anger.

It makes me sad that you have had this problem for the last few months, without treatment, but just very grateful that it was finally diagnosed.

I hope you learn a lot about this condition and I feel like you will be able to control it, be on the road to recovery, and start life anew.

I can just imagine what the last few months have been like.

We all love and support you in this journey. :grouphug:
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Flying Dream Blues Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-21-11 03:49 PM
Response to Original message
6. Prayers for encouragement and healing
to you, laylah. I hope you find natural things that help your condition, and soon! Like Celebration, and everyone here, I'd like to offer loving support and hope you will let us help whenever you need encouragement or just a place to vent.

:hug:

:loveya:
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laylah Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-21-11 09:11 PM
Response to Original message
8. I am UBER blessed
to have you all! :hug: Thank you. :loveya:
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MorningGlow Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-22-11 09:26 AM
Response to Original message
9. Sending you light
for best outcome--appropriate treatment for comfort. :hug:

Chronic illnesses suck. x(
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laylah Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-22-11 01:19 PM
Response to Reply #9
11. Thank you,
MorningGlow. I will see doc tomorrow to set a course to containing this thing. My current attitude SUCKS, but, as the old adage goes "this too shall pass".

I am blessed to have you, and everyone here, on my "team". :loveya:
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japple Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-22-11 10:22 AM
Response to Original message
10. Dear Laylah, sending you peace, comfort, and the energies
you need to deal with your health issues. I hope you will find the way to make a transition that will work for you. Ask your angels to help. :hug:
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laylah Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-22-11 01:49 PM
Response to Reply #10
12. But, but, but...
I REALLY like spinach! :rofl: That is one of the foods I am to avoid. My attempt at levity.

Thank you for your "gifts", dear japple, and all. :grouphug:
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