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My doctor thinks I have a brain tumor, but I can't afford an MRI. Anyway, here's a speech I wrote.

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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:01 PM
Original message
My doctor thinks I have a brain tumor, but I can't afford an MRI. Anyway, here's a speech I wrote.
Yes, my doctor thinks I have a brain tumor due to some blood work. I recently had another test that came back negative, and that test already set me back more than I have. Since there is no reason to think the tumor is cancerous, I will not be paying thousands of dollars just to discover that I have a non-life threatening brain tumor that I would need brain surgery to remove and would drive my insurance rates up or make me uninsurable.

Fifteen years ago, I had an MRI because a doctor thought the same thing. I never found out the diagnosis because I lost my health insurance the week after the test. I went off the medication they gave me because it made me so sick. I figure, since I've lived with whatever is going on for 15 years ago without it getting worse, I can probably live with it for a few more. The worse side effect is that it seems to make me gain weight. If I lived in a country with real health care, this would probably be something that could be taken care of. But I don't live in a country like that. Not like that at all.

The point of this post isn't to ask for medical advice or "sympathy." The reason I am posting this is to say that I am not an LGBT person first and a working-class person second and a person who could use real health care third. My LGBT status and the discrimination against me effects my health and my finances. My partner is stuck in a low paying job because it is one of the few that "provides" health insurance to domestic partners. Actually, it lets us buy it at a discount and then the benefits we buy are considered ADDED salary for her because we are gay she has to pay an extra tax on my health care that straight people don't have to pay.

In other words, my issues are pretty much the issues of most working class Americans, only they're exacerbated by being female and gay.

My issues are not the esoteric issues of a privileged class of people.

I was asked to give a public speech at the anti-prop 8 protest the other day. I thought that the protest theme was disorganized, but I consented to speak nonetheless. I figured that now's as good a time as any to post what I said at the rally:

******


As a former striker who spent 6 months on a NYC picket line
I'd like to begin by saluting those who risked their jobs
And accepted financial hardship by calling out of work today.

Since the passage of Prop 8
Folks seem compelled to repeat a popular quotation from Martin Luther King:
"The arc of history is long, but it bends towards justice."
But what exactly is "justice"?
We usually describe it in terms of legal punishment
Or in terms of giving people their fair share.
But I'd like to add another layer of meaning to the word,
A layer inspired by the philosopher Plato
Who lived 2500 years ago
In a world where gay romance was as common and natural
As grass and leaves.

According to him, the unjust do more
Than simply create the conditions of inequality.
The unjust are soul-crushing tyrants
Who destroy the talent and creativity of a people.
The unjust derail the arc of personal histories, of national histories,
And of human history.

Justice, on the other hand, is the commitment to a common creative destiny.
Justice is the act of encouraging the best from all for the benefit of all.

A society committed to justice wouldn't fire workers because they're gay.
A society committed to justice could never be threatened by the commitment of two people in a loving relationship.
A society committed to justice would ask what insight transgendered people have to offer
Instead of condemning them to the margins of society.

Honestly, on its own,
I'm not sure which way the arc of history is bending for us.
So far, it only seems to bend
When we ourselves have the courage and conviction to bend it.
This was the lesson of Harvey Milk, of ACTUP, of the Stonewall, Compton Cafeteria, and White Night Riots.

Because there's a difference between being peaceful and being passive.
And in the face of injustice, maybe rage is a more genuine expression of hope than cheerful indifference.

We are the history we’ve been waiting for.

But if we’re going to bend America towards justice
We need the full weight of everyone:
Because our history is black history,
It is latino history,
It is working-class history.
And whether our political enemies like it or not,
It’s American history.

I believe we can win. But only with courage and the will to fight
If we don't betray ourselves
And we don't betray one another, we'll win
Through the power of our conviction alone, we'll win.

I leave you with a quote from the writer, Alain Badiou
Who learned about courage from his father
Who joined the French Resistance and fought the Nazi Occupation:

It is not the signs of power that count
Nor exemplary lives
But what a conviction is capable of: here, now, and forever.
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lapfog_1 Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:10 PM
Response to Original message
1. I totally sympathize.
I had a heart defect (well, actually three) when I was born, one of them (Wolfe-Parkinson-White) became serious enough that 13 years ago I finally had corrective surgery. The very next month my insurance company canceled my policy. Haven't been able to get any kind of health care since then (BC quoted me $1200 a month with a $10,000 deductible AND it wouldn't cover any pre-existing conditions). Right now, I think I might have testicular cancer. Might. I'd like to get an MRI to see, but the total cost would be around $3K. Paid for out of my pocket. I've tried many different clinics to see if there is some sort of payment schedule or financing available. Nope. I was trying to save $200 a month for it but now that I've been laid off... plus there is a root canal that I need done ($900 to $1100).

Sigh.
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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:24 PM
Response to Reply #1
4. I wish you the best of health, my friend.
Our system is in a wreck. Our leaders have failed us, again and again, but we can't fail each other.
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druidity33 Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 10:56 PM
Response to Reply #1
19. ever considered
vacationing in Mexico or Canada?

might be worth trying... especially with the root canal.

Maybe Cuba?

Seen "Sicko"?

:shrug:

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northofdenali Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:16 PM
Response to Original message
2. Bookmarked. Recommended. Emailed.
Beautiful. Moving, evocative and intelligent - you, friend, ain't dumbin' down to the audience at all! My daddy was a union organizer starting in the 50's, wound up being President of his local, then Business Manager......... then he went to the dark side.......

And became a labor relations negotiator for one of the largest corporations here in the state. He wound up getting the Teamsters, IBEW, and several others the best contracts they had EVER had. Go, my Daddy!!!!

UNION YES!!!!!

Organize, Revolutionize, and Organize again!!
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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:21 PM
Response to Reply #2
3. Thank you. Unions are really our best hope.
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barbtries Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:34 PM
Response to Original message
5. a beautiful speech
if that thing starts messing with your mind, go to the county hospital or wherever you must to get treatment. hopefully it never seriously interferes with your good health.
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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:53 PM
Response to Reply #5
8. I think I'd rather take my chances then try for a low budget brain surgeon!
Luckily, it's not a big deal. I read up on it and it's not likely to do more than cause hypothyroidism and prevent me from having kids. The elevated blood levels were found during a routine blood check. I have no symptoms, so I'm not going to pursue it. Thanks for the support.
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blue neen Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:45 PM
Response to Original message
6. I am truly sorry for the injustice in our system and society, already
so biased toward the working class, even more so biased toward LGBT.

I hope that you are able to get help for your medical condition...best of luck to you.
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DainBramaged Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 08:46 PM
Response to Original message
7. ..................
:hug: :cry: :hug: :cry: :hug: :cry: :hug: :cry: :hug:
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Obamanaut Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 09:04 PM
Response to Original message
9. From time to time I read a post here that makes me wish I were
young again and not fritter away my "learning years" so I could write like that now that I'm not young.

Best thoughts coming your way.
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bertman Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 09:07 PM
Response to Original message
10. Eloquent, beautiful, powerful and inspiring words, readmoreoften. Thank you for them.
May I copy your speech and send it to friends and family?

I hope you will regain your health and live many happy years with your partner.


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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 09:30 PM
Response to Reply #10
11. Please do.
I spent the day writing it! I'd rather it be read than let it sit lonely on my hard drive!
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gristy Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 09:35 PM
Response to Original message
12. You write very well
This is very good - I enjoyed reading it.
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alfredo Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 09:49 PM
Response to Original message
13. Damn, gal. your health comes first. Was that Bromocryptine they gave you?
My wife has reoccurring brain tumors. They use bromocryptine to shrink them. It made her sick.
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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 10:48 PM
Response to Reply #13
17. I do believe it was.
Parlodel. For me, I think the cure is more dangerous than the illness. At least in my case.
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glinda Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 10:15 PM
Response to Original message
14. You (and I) are two of the reasons we need Universal Healthcare.
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Joe Fields Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 10:22 PM
Response to Original message
15. Are you nuts?!!!!!!!

Fuck whether you can afford an MRI or not. GET ONE!!!!!


It's only money. You can make more. You only have one life. Don't be stupid.

And yes, if you don't get one, then you are stupid. No sugarcoating it.
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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 10:46 PM
Response to Reply #15
16. Yeah, I need a roof over my head too. It's not a life threatening condition.
I can't spend money I don't have to prove I have an illness I can't afford to treat only to lose access to health insurance. It's very likely that I won't have health insurance for long anyway, because my partner's job is tenuous and if she already runs the risk of losing our insurance because of cutbacks on hours. I can't risk becoming uninsurable.

It's not cancerous and I'm not getting brain surgery to treat a non-life threatening condition anyway. I'd love to know the extent of what's wrong, but frankly, I'm more likely to need insurance for a catastrophic accident and I'd rather not screw myself over. If it effects my life more than causing thyroid trouble, I'll consider it going into debt. Right now I'll treat the symptoms as best I can. If that's "stupid" fine. I'll err on the side of stupid.
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BrklynLiberal Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 10:55 PM
Response to Original message
18. I have some friends who have gone up to Canada for medical treatment.
Is this a possibility for you...?
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readmoreoften Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 11:02 PM
Response to Reply #18
21. Not at the moment.
If it becomes one, I'll definitely do what I can to leave the country. At the moment, I don't think it's a terrible crisis. It's just a frustration.
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truedelphi Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-17-08 10:58 PM
Response to Original message
20. What absolute eloquence. Your words shine like the perfection of a snowflake, or
Edited on Wed Dec-17-08 10:59 PM by truedelphi
the rainbow beauty of a sunlight ray streaming through a window.

Like everyone else posting here, I wish you were not living in the only industrialized nation on earth that would rather spend the heavily taxed wages of its middle incomed and lower incomed class on WAR rather than on the health and well being of its citizens.

I wish you peace of mind and a long and happy life.
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eridani Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-18-08 01:31 AM
Response to Original message
22. HR fucking 676 NOW!!!
Everybody in! Nobody out! And please post this to change.gov.
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bluedawg12 Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-18-08 01:35 AM
Response to Original message
23. Very eloquent. Thanks for sharing this.
:pals:
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abirdinthehand Donating Member (15 posts) Send PM | Profile | Ignore Thu Dec-18-08 02:27 AM
Response to Original message
24. You can find out the results of that first MRI
By going to the medical center where it was performed, and visiting the medical secretary. You can request copies of your medical records from them. If the facility has gone digital with the imaging, they can burn you a CD, with the program to read it built in, for a small fee.
I would recommend pursuing a job AT an HMO - they often offer super health insurance. I wouldn't recommend brain surgery unless you are also ready to pay for complications that often arise after such complicated interventions.
Best of luck, you don't have much if you don't have your health.
I'm due for my second brain surgery this spring.
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LeftishBrit Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-18-08 05:27 AM
Response to Original message
25. Please reconsider your decision here
Having the appropriate treatment for a non-malignant brain tumour can make all the difference to the QUALITY of your life - which is perhaps more important than the quantity. It could mean the difference between leading a normal life and being very seriously disabled.

If you cannot afford the treatment, are there organizations - e.g. for support for people with brain tumours - that could help?
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sellitman Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-18-08 11:19 AM
Response to Original message
26. My son had a Tumor removed successfully in Feb.
Please seek help.


:hug:
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