19 year battle for Lyme treatment, we may finallty be winning...

[kickysnana]

Legislators hear testimony about treatment of Lyme disease

http://www.hometownsource.com/index.php?option=com_content&view=article&id=12368:legislators-hear-testimony-about-treatment-of-lyme-disease&catid=13:capitol-news&Itemid=29

Marty’s bill stipulates that physicians cannot be subject to disciplinary actions by the state board of medical practices solely on basis of prescribing, administering or dispensing long-term antibiotic treatment for patients diagnosed with chronic Lyme disease.

“This bill frees physicians to use all of their skills to treat Lyme disease patients,” said Dr. Elizabeth Maloney of Wyoming to the Senate Health, Housing and Family Security Committee.

The illness was misdiagnosed, their concerns not taken seriously, and the lack of help — physicians willing to prescribe long-term antibiotics — forced them to other states for treatment, several said.

In 2008 there were 1,050 confirmed cases of Lyme disease in Minnesota.

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Research shows that only 1 case in 20 is confirmed by testing.
Similar bills have been passed in other states.
Round 2 on Thursday in the House with peer reviewed direct rebutal of Dr Bakken's testimony in the Senate. Dr Bakken was on the board of the IDSA when the court ruled for the state of CT regarding skewed diagnosis and treatment guidelines for Lyme Disease. On Tuesday the Ct AG sued the IDSA for failing to comply with the court orders on the first ruling.
$15 worth of antibiotics for at least 6 weeks for new infections and at least 6 months for misdiagnosed or late stage Lyme can save hundreds of thousands of dollars in treatment, testing, hospitalizations for severe complications from untreated infection, not to mention, loss of income, gaps in education and early death.
It was politics that caused this mess and it will take political will to fix it. Nobody should have to suffer for a treatable disease to further some peoples careers.
Sister Kenney is smiling once more!

:woohoo:

[annm4peace]

1. thank you

a friends 30 year old daughter was misdiagnosed and it took over a year and almost her death before they realized it was lyme disease. She is still recovering.

I heard there is a documentary about those with lyme disease not getting diagnosed. I wish I knew wat it was called.

[kickysnana]

2. There are a couple "Under our Skin" and

"Under the Eight Ball" for conspiracy junkies.

Ben Barnevold, graduate student in Duluth, a cinemaphotographer is working on a documentary about Minnesota Wisconsin Lyme patients and their struggle for diagnosis and treatment. Lynn McMichaels, former LDCM board member had written a history before she retired and moved (out of stateI think).

Cable TV out east had quite a few, the one that was the most dramatic was some of the 7000+ children who were told to go home and live with their pain and debility by our medical system before and after they were treated by now 89 year old Charles Jones MD of CT. He is featured in "Under our Skin". So may Minnesota kids owe their health and lives to him.

I will be going to the House hearing tomorrow afternoon. I hope that our physicians expose Dr Bakken for the outright liar he is. Science will win out, it has just has such a hard time with everything being corporatized and politicized.

[kickysnana]

3. House hearing has been postponed until Feb 17th. n/t