68. Lost my mom to ALS in June. The 3rd would have been her 58th B-day.
My advice to you is get as good of a diagnosis as you can. MDA can refer you to doctors that specialize in ALS. My mom's doctor, Dr. Glass is one of the best. And then do the paperwork to get your social security and medicare started (if you need them) ASAP should it be confirmed you have it.
The biggest thing is to not get discouraged. Try to be resourceful in coming up with new ways to do things. My dad made my mom a set of silverware with oversize handles made out of foam that she could hold on to. They mounted soft hooks to the walls in certain places to help her get dressed and undressed. stuff like that. Most of the physical therapy is geared toward stuff like this as well.
MDA is great and did a lot to help my mom, especially in arranging physical therapy.
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