Reply #5: The latest news... [View All]

[yellerpup]

From my niece's blog:

we got the news we pleaded for: NOT ONLY NO TUMOR GROWTH- DISAPPEARANCE! eek! the tumors were pretty much undetectable with this MRI and we couldn’t be more elated. we were hoping for chemotherapy to move to an every 3 week schedule and this is what we were led to believe, but the plans changed. AGAIN. like i said in a previous post, we are following dr. mcclain’s protocol {the LCH IV protocol}. i didn’t read the nitty gritty because i gave a copy of the pdf to our oncologist. well, i guess he didn’t read the nitty gritty until today because he let us know that the new protocol for CNS risk LCH patients is 12 weeks of chemotherapy every week and then we go to chemotherapy every 3 weeks. so if you are keeping track: we have 5 more weeks of chemotherapy every friday. we were a little bummed to hear this news today, but it is what it is and we have to continue. IT’S WORKING!!

Thanks so much for your support! :hug: