General Discussion
In reply to the discussion: Me vs CP and DU (the long story, for those who don't know it) [View all]IdaBriggs
(10,559 posts)for six and a half years, and my efforts to get "Real Researchers" interested are somewhat legendary. I am on a first name basis with reputable and respected people in the field, and am not even the first who has worked for investigation based on both individual case studies and the aggregation of data from sources including WHO as well as my own efforts (only partially detailed here).
I am fully aware of the obstacles preventing dauntless researchers from investigating, and can detail them out from the mouths of people I actually respect. My favorite answers include "it is too complicated", "it will take twenty more years" and "do you know they talked about this on quackwatch?" The last creates a near impossible situation for any young researchers because who wants to start a medical career, with funding from NIH only at a 7% level *if* you can research something you already know the answer about so seriously, who wants to be thought of as a quack and where can you even get published?
I have done the math on the opportunity cost. CP alone is 16,000 children in the United States -multiply that by the twenty years or even since 2012 when the videos were taken, and if you don't care about the lives, multiply the tens of millions it costs when there is a good chance we can make more than half of those cases disappear into "normal lives". Do the same thing with infant mortality (1 in 10 preemies are born with this known nutritional deficiency, and the current protocol is "go home and wait until your kid is old enough to self-correct" - 85% chance of normal versus 98% of normal) or the 4 out of 5 kids with sensory processing issues who can handle life in a normal classroom environment within six to sixteen weeks --
Shall we talk about irresponsible? I know where I think the blame lies:
Evidence based medicine does NOT mean "ignore any evidence that you don't like." The reason I know beyond a shadow of a doubt that this is SCIENCE is because the results are REPEATABLE.
At this point, I have done enough to demonstrate this should be investigated with more thorough methods. (I can discuss THAT for HOURS!) I have a testable plausible theory, hundreds of examples, and am literally one of the world's leading experts on this topic.
If you think my talking about it on DU is bad, you aren't going to be happy with what happens next, because if you think I am going to let children DIE while people act like simply correcting for already documented nutritional deficiencies is as insulting as implying that a gentleman Doctor wash his hands before delivering a baby lest the mother die of childbed fever later that week, you are sadly mistaken.
If you have a problem with what I am saying, PROVE ME WRONG.
Good luck with that.
In the meantime, I am not going to sit down and shut up so either help me out, or get out of the way, because I am DONE politely pretending this stuff, while a bit complicated, is too difficult for the average parent to follow.
If your kid has the checklist of symptoms, try the easy nutritional fix FIRST. Apparently it works for better than 4 out of 5 kids. If it doesn't, try something else.
Duh.
But I appreciate your insights. Allow me to assure you that you were neither the first nor the last to believe "somebody" should investigate. The list of people too busy doing their damn jobs to DO their jobs is shamefully long.
Politics. Bureaucracy. Arrogance. Pride. Prejudice. Ignorance. I have encountered all of them.
Your opinion has been noted. My goal is clear - save lives - and I know how I am going to accomplish it.
Trust me when I say, "sit down and shut up" isn't anywhere on that list.
Yes, I repeated myself there. I have been doing that A LOT and will continue to do so in the future. Three families so far have reached out to me from this thread alone. The bile from that one hidden reply is meaningless if even one of them sees a better life for their loved one.
I am clear on my priorities. I appreciate DU and believe it or not, I appreciate YOU. I have always been an "outside the box" person; who knew it would end up being so important?