Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Solly Mack

(90,762 posts)
Wed Jun 18, 2014, 10:48 PM Jun 2014

Of Toxic Bondage

Last edited Wed Jun 18, 2014, 11:29 PM - Edit history (1)

On Tuesday morning I went in for my first dose of chemo and to have my mask fitted for radiation therapy.


First up was my weekly blood work at the lab, complete with visits from the dietitian and the hospital social worker. Both got a little squeamish during the blood draws. They both begged off and said they would see me later.

It was an active morning filled with nurses walking me back and forth between the two treatment clinics, deciding on who would get me first. Sort of a ghoulish popularity contest but you take what you can get.

Radiation won out but only after the Chemo nurses placed my IV. It took 4 sticks to get one going. The death grip I had on the deceptively comfortable lounge chair might have been part of the problem. I was already mad at the chair. When I first sat down the chair reclined back on its own and my feet came out from under me. I can't control a lot of what is happening to me now but I still wanted to control where my feet went - and on the floor was where I wanted them.

At the radiation clinic a very nice woman explained what she and a very nice man were going to do to me. It began by them asking me to remove my shirt and then laying me out on a table connected to the X-Ray. A pillow was placed under my knees and my bra straps and hospital gown were pushed down my shoulders. Once on the table they explained how they were going to place my hands in fluffy cuffs that would be attached to my feet. I had to bend my knees up on the table and they placed a foot hold around each foot. Each foot hold was attached to a cord that was attached to the fluffy cuffs that ended in a loop knot. Once I straightened my legs out the cord would pull against my hands forcing my shoulders down and tightening the fluffy cuffs around my wrists.

Once in position I had to remain as still as possible for the X-Rays.

So here I am not only agreeing to be placed in bondage - I'm the very instrument of my bondage. I don't think they make a safe word for that level of kink. And would I even listen to myself if I shouted out my safe word? Turns out, I wouldn't. They told me to stretch my legs out more to pull the cuffs tighter and I did - again and again. My fingers were numb by the time it was over.

Next up comes the mask. The mesh mask starts out flat and fairly solid. It is washed in a warm bath to soften it up and then this flat piece of mesh is pushed down over your face, stretching to form around your head. My mask includes the tops of my shoulders. Once they get the mesh pressed down to the table there are screws that lock the mesh into place and you can't move your head.

So now I'm hog tied and wearing a mask that brought to mind Hannibal Lecter. Every time one of them would ask me a question I wanted to answer "Yes, Clarice" or "No, Clarice" through the lip binding mesh.

I had to stifle my giggles. The mind goes where the mind goes.

The session ends and I thank them both for a good time. The woman walks me over to Chemo.


While the nurse is getting my various bags ready I tell her about the kinky time over in Radiation and she doesn't stifle her giggles. Which is good since I'm laughing about it with my husband. I've made my peace with the chair... thanks in no small part to the large dose of Benadryl.

I was getting a loading dose and would be there for two hours.

The dietitian shows back up while I'm drifting in and out of sleep. I had slept poorly the night before so a Benadryl induced nap was most welcomed. The dietitian had a lot of info and thankfully she had handouts.

A lot of Do's and Don't's about what I could eat and what things to avoid. I did my best to follow along.

When she got to the part about the bathroom activities that would now require a Hazmat team my eyes popped wide open.

I kid, of course. I won't need to call a Hazmat team - I have to be my own Hazmat team.

Lot of poo-jokes possible there and believe me when I say I thought of a bunch.

I'm still giggling over it.


So, a long day. A day of firsts. A stressful day. A scary day.

But, OH!...a day where I could still laugh.










16 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Of Toxic Bondage (Original Post) Solly Mack Jun 2014 OP
I think this statement will serve you well ... slipslidingaway Jun 2014 #1
I'll have something to think about on the bad days. Solly Mack Jun 2014 #2
I really do believe in the saying mind over matter ... slipslidingaway Jun 2014 #3
Thanks, slipslidingaway. Solly Mack Jun 2014 #4
I love your thread title, my dear Solly Mack! CaliforniaPeggy Jun 2014 #5
Thanks, Peggy! Solly Mack Jun 2014 #6
A positive attitude and a strong support group goes a long way ... slipslidingaway Jun 2014 #7
Yikes, Solly Mack! mnhtnbb Jun 2014 #8
I hope so, too. Solly Mack Jun 2014 #9
Keep going keeping going n/t intaglio Jun 2014 #10
I will. :) Solly Mack Jun 2014 #11
Ah! I did that too! Tab Jun 2014 #12
Hey! Yep...no music for me, fortunately. Solly Mack Jun 2014 #13
Oh my! Ruby the Liberal Jul 2014 #14
Hey Ruby! It's going OK. Solly Mack Jul 2014 #15
Even managing a smile is enough to release endorphins. Ruby the Liberal Jul 2014 #16

slipslidingaway

(21,210 posts)
1. I think this statement will serve you well ...
Wed Jun 18, 2014, 11:27 PM
Jun 2014

"... But, OH!...a day where I could still laugh."

Thanks for the update

slipslidingaway

(21,210 posts)
3. I really do believe in the saying mind over matter ...
Wed Jun 18, 2014, 11:38 PM
Jun 2014

it is certainly not the only factor, but does play a role IMHO. So continue to laugh and maintain a positive attitude, not too positive though, you do need some down time, but in the big picture I think it helps.



CaliforniaPeggy

(149,588 posts)
5. I love your thread title, my dear Solly Mack!
Wed Jun 18, 2014, 11:47 PM
Jun 2014

I will be following along as you blog about your experiences...

I was a nurse a long time ago, and even though I didn't do this kind of nursing, I am fascinated.

I'm so glad you can laugh! It really does help.

Tab

(11,093 posts)
12. Ah! I did that too!
Sun Jun 29, 2014, 11:41 AM
Jun 2014

I had to go for stereotactic therapy (I think it was called) and they fit a mask - warm plastic mesh that cools at it adheres (I think I asked and they said it needs to reach 140 degrees to be pliable, then obviously they cool it down a little bit before putting it on you). At then end it looks like some funky fencing mask down to the shoulders. I got to keep mine. Maybe I'll paint it for halloween.

First time through, however, sucked (I had four or five sessions). I was uncomfortable, unsure how to get comfortable, and the music they had in the background (a CD carousel that played tunes picked randomly) but unfortunately they had it on "sample" so it'd play 1 song for 5 seconds then move on to the next. It took a few minutes to figure out what was going on, but after that it was hell. I'd barely get into the cajun music then *poof* it was back into James Taylor or Garth Brooks or something.

After that, I brought my own CD.

Fortunately, the stereotactic radiation seemed to work - no moe lesious that we can detect.

Take care,

- Tab

Solly Mack

(90,762 posts)
13. Hey! Yep...no music for me, fortunately.
Sun Jun 29, 2014, 12:10 PM
Jun 2014

I get a wee bit claustrophobic so the fitting was the worst part for me so far. I was in the mask for a lot longer than during treatments. (but you know how that goes)

That's great on no more lesions!

They said I could keep mine and I will be decorating it.

Ruby the Liberal

(26,219 posts)
14. Oh my!
Wed Jul 2, 2014, 06:30 PM
Jul 2014

I missed this - just catching back up. What a wonderful, horrifying, funny read! You brought tears to my eyes with that narrative - some LOL and some gobsmacked.

Thank you SO much for posting this. Going to catch up on your other thread now - hopefully all is going well?

Ruby the Liberal

(26,219 posts)
16. Even managing a smile is enough to release endorphins.
Wed Jul 2, 2014, 06:40 PM
Jul 2014

They taught us years ago to smile while on the phone - it boosts your attitude and that comes through physically (even in your voice).

Imagine how much laughter is helping!!

Latest Discussions»Support Forums»Cancer Support»Of Toxic Bondage