General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsTwo years and three months.
For two years and three months I have been doing 24/7 home care for my mom. It is just my sister and I. It has been the hardest job in my life.
It was lonely from the beginning and now devastatingly so with the pandemic and my sister going through a second surgery. I am isolated caring for two. I am exhausted every day. I sleep (sort of) with a baby monitor in my bed and a cell phone at my side. Mom knows to call me when she needs me so even in my awake hours the phone is in hand or at my side. I plan showers and chores around her nap time and even then I check the phone every five minutes.
When the pandemic started we let hospice workers go. We had no choice at the time. We were trying to keep mom safe. We started up again this week with HHS coming in to shower her three times a week. She was evaluated today to see if she still qualifies for hospice. She is mentally aware, yet weak and on oxygen 24/7...congestive heart failure. She has suffered two strokes and blind in one eye. If they decide to drop her, we lose everything.
If mom had been in a nursing home she would be dead. Fact.
Mom will be celebrating her Birthday tomorrow. She will be 94.
lapfog_1
(29,243 posts)come over once a week to give you a break for a few hours.
sheshe2
(84,031 posts)You are so very kind.
Demonaut
(8,937 posts)guillaumeb
(42,641 posts)My mother-in-law lived with us for 7 years.
Her last 2 were the hardest.
Healing thoughts to you, she. It is a hard job.
sheshe2
(84,031 posts)My great niece turns one on the 26th. I held her twice and now have only seen her from a distance...she doesn't really know us.
Good on you and your wife for all those years of caring, guill.
Thank you.
guillaumeb
(42,641 posts)My new granddaughter is 3 weeks old today. We will see her for the first time Sunday.
Does your mother qualify for respite care?
sheshe2
(84,031 posts)With the pandemic we do not want many people here. Strange times.
Enjoy your visit with your granddaughter.
guillaumeb
(42,641 posts)Phoenix61
(17,025 posts)Everything revolved around her. Shes gone now but I feel so lucky that I was able to care for her. She had advanced Alzheimers and wasnt sure who I was but theres still a lot of good memories. Try and take care of yourself. I dont know what I would have done without DU for company.
Ohiogal
(32,165 posts)Has to be one of the hardest jobs in the world.
I remember hearing Hillary talking about her ideas to help caregivers. If only, if only....
Wishing you strength, sheshe2.
sheshe2
(84,031 posts)If only...
raccoon
(31,131 posts)One thing that would help caregivers is a national health plan. Unless he or she is old enough for Medicare or is retired and has a health plan through their retirement, theyre screwn.
Ohiogal
(32,165 posts)And perhaps some extra $ of some kind for caregivers to use for every day living expenses, since they are more than likely not earning a paycheck.
JohnnyLib2
(11,212 posts)And may the Goddess of Caregivers shine light on you!
42bambi
(1,753 posts)end, you can look back and say that you did what your heart told you to do. Your Mom and sister are fortunate to have you.
irisblue
(33,048 posts)sheshe2
(84,031 posts)It wouldn't be so hard this go around if it weren't for the pandemic.
My sisters last surgery, we had HHS and another care giver that mom's insurance covered most of. She was here 8-10 hours a week. She did showers, lunch and laundry. I could go out, see friends, do chores and sleep!
Thanks, sweetie.
leftieNanner
(15,197 posts)You are a blessing to your family.
And Happy Birthday Mom!
monmouth4
(9,711 posts)sprinkleeninow
(20,268 posts)You are all in my heart of hearts. 😔 💙
Marie Marie
(9,999 posts)Don't know if this is helpful but a friend of mine took over as caretaker of his mother when she began her mental decline but still knew enough that she did not want to leave her home and he didn't have the heart to move her. He eventually had to but, in the meantime, they installed cameras in her house so that they could have the peace of mind of checking on her at all times. That carried them through until she needed to be placed under constant care.
Hope you take some time for yourself sheshe and please remember how many friends care about you here at DU.
imanamerican63
(13,835 posts)She finally called in a home care worker to help because my grandmother fell and broke her hip and wrist. I will have you in my prayers and I commend you for the tough job you and your sisters are doing.
Oh, and Happy 94th birthday to your mother too!
world wide wally
(21,759 posts)Hang in there, SS2
handmade34
(22,759 posts)been there, done that... I know
peggysue2
(10,849 posts)More power to you (for real).
I know how hard care-taking is from personal experience. You're right--hardest job around. I cared for my nearly grown son when he was brain injured through his recovery, rehab and eventual reentry into the world. My husband and I took care of his mother in her last two years.
But I never had two people to care for at once. Yikes!
Strange, too. My husband and I were just talking about his mother, how we would have handled things in a Covid-19 environment, how hard it would have been particularly at the end sans bather and the various nurses/therapists who came in for bi-weekly or weekly checks.
Think you're right about the nursing home environment. Someone with your mother's medical history would be very vulnerable and we know now of the many deaths linked to nursing homes across the country.
Take care of yourself as best you can, she. Happy birthday to your mom, too.
BigmanPigman
(51,650 posts)and "Hang in there, you're fantastic!" to YOU!
tiredtoo
(2,949 posts)You are to be commended for what you are doing. She was there for your first breath and you will be there for her last breath. Such love and caring is exactly what we need more of in this world today.
Dem2theMax
(9,659 posts)I did what you are doing, and I know, boy do I know.
My mom made it to 94. Somehow that made this post of yours feel even more personal.
It's been eight years since Mom finally got to exit this world. I still have the baby monitor. And so many other things that helped me take care of her, and my dad.
As someone further up-thread said, I wish I could come and help you.
I remember it being the most stressful and exhausting time in my life. And I would have done it for 20 years more if that's what it took. I did it for seven years.
In addition to being stressful and exhausting, it was also the most love-filled and rewarding time of my life.
I cherish every minute I got to spend with my mom and dad.
Every time I thought I couldn't take another step, I would remember that it was all about love.
May that same love surround you and your mom and your sister.
From one daughter to another; one day at a time, one hour at a time, one minute at a time. And always remember to pat yourself on the back. Whether you believe in them or not, you are doing the work of angels.
cry baby
(6,682 posts)Im an only child and took care of my elderly parents for 10 years. Mom died in late March, just coming into the pandemic.
I feel your deep pain. Its agonizing grieving before they go while theyre needing you so very much.
There is a group on Facebook, if you are so inclined. Its a closed group so other family members cant read there which gives complete freedom to vent. Wow, there is a lot of honest and even harsh venting. Everyone has their own life experience with this effort. Anyway, pm me if you want the name of the group. It really helped me not feel alone.
Ill keep you in my thoughts. Take as much care of yourself that you can.
GeoWilliam750
(2,522 posts)I so hope that you are able to find some time for real rest.
spanone
(135,923 posts)You are a good daughter and sister.
☮️ ?️
marieo1
(1,402 posts)sheshe2........prayers to you, your Mom and Sis, it's a dreadful time to be in your situation. Blessings to all of you.
dawg day
(7,947 posts)I hope you hear good news about the hospice workers.
I wish Covid were over, so that you could get a break.
EllieBC
(3,049 posts)Caring for elderly parents is hard enough but with the pandemic its been a source of major stress for many.
Youre amazing, sheshe.
pazzyanne
(6,560 posts)Try hard to find ways to take care you within your hectic schedule. I know that is almost impossible, but it is necessary for you to stay healthy. Blessings on you, sheshe2!
FuzzyRabbit
(1,970 posts)And give your mom and yourself a hug from all of us. I would hug you both in person I could.
I know you will stay strong.
With love,
FuzzyRabbit
LoisB
(7,250 posts)Are to have you.
grantcart
(53,061 posts)And right about know you are thinking "Lord I got more character than you can imagine so how about lightening up the load a bit"
I would call him myself but I seem to have misplaced the number. . .
Happy birthday to your Mom
Stay strong
oasis
(49,472 posts)My best to all of you.
LiberalLoner
(9,762 posts)You are truly a hero. You have kept your mother alive and well. I admire you very much.
I hope your mother has a wonderful birthday.
ancianita
(36,212 posts)If you're not noble, I don't know who is.
May you keep showing your great love. At 94, that the best birthday gift your mom can feel.
May you get the help, relief and rest you need and deserve.