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sheshe2

(84,031 posts)
Thu Jul 16, 2020, 09:58 PM Jul 2020

Two years and three months.

For two years and three months I have been doing 24/7 home care for my mom. It is just my sister and I. It has been the hardest job in my life.

It was lonely from the beginning and now devastatingly so with the pandemic and my sister going through a second surgery. I am isolated caring for two. I am exhausted every day. I sleep (sort of) with a baby monitor in my bed and a cell phone at my side. Mom knows to call me when she needs me so even in my awake hours the phone is in hand or at my side. I plan showers and chores around her nap time and even then I check the phone every five minutes.

When the pandemic started we let hospice workers go. We had no choice at the time. We were trying to keep mom safe. We started up again this week with HHS coming in to shower her three times a week. She was evaluated today to see if she still qualifies for hospice. She is mentally aware, yet weak and on oxygen 24/7...congestive heart failure. She has suffered two strokes and blind in one eye. If they decide to drop her, we lose everything.

If mom had been in a nursing home she would be dead. Fact.

Mom will be celebrating her Birthday tomorrow. She will be 94.

41 replies = new reply since forum marked as read
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Two years and three months. (Original Post) sheshe2 Jul 2020 OP
hey... if you were near me I'd volunteer to lapfog_1 Jul 2020 #1
Thank you, lapfog. sheshe2 Jul 2020 #4
thank you for posting this, you and your mother are in my thoughts and heart tonight. Demonaut Jul 2020 #2
Recommended. guillaumeb Jul 2020 #3
The pandemic adds so much to the emotional stress. sheshe2 Jul 2020 #5
How could it not add to the stress? guillaumeb Jul 2020 #10
That is really covered under hospice. sheshe2 Jul 2020 #13
Understood, and thank you, she. eom guillaumeb Jul 2020 #14
I was sort of there with my mom. Phoenix61 Jul 2020 #6
Caregiving Ohiogal Jul 2020 #7
Never loved Hillary more than when she addressed that. sheshe2 Jul 2020 #11
One thing that would help caregivers as a national health plan. raccoon Jul 2020 #39
Yes, absolutely. Ohiogal Jul 2020 #40
Hugs from afar, She JohnnyLib2 Jul 2020 #8
Bless you for caring so much, even as your own life is turned up side down, in the 42bambi Jul 2020 #9
sheshe, all I can do from here is send you love and light and hugs so I am irisblue Jul 2020 #12
Thank you, Irisblue. sheshe2 Jul 2020 #17
Sending you love she. leftieNanner Jul 2020 #15
Thinking of you sheshe2..n/t monmouth4 Jul 2020 #16
We experienced this in 2009. But not coupled with a pandemic. sprinkleeninow Jul 2020 #18
Bless you for filling a near impossible job. Caretaking is challenging in the best of times. Marie Marie Jul 2020 #19
My mother also took care of my 93 grandmother back in 2009 to 2013. imanamerican63 Jul 2020 #20
Happy birthday, Mom world wide wally Jul 2020 #21
i only have hugs... handmade34 Jul 2020 #22
Wow, sheshe peggysue2 Jul 2020 #23
"Happy Birthday" to your Mom BigmanPigman Jul 2020 #24
sheshe2 tiredtoo Jul 2020 #25
sheshe2, Dem2theMax Jul 2020 #26
What you're doing is the hardest job anyone could do. cry baby Jul 2020 #27
It is such hard work GeoWilliam750 Jul 2020 #28
sheshe2... spanone Jul 2020 #29
Prayers to all marieo1 Jul 2020 #30
Hugs-- and happy birthday to Mom. dawg day Jul 2020 #31
Please tell her happy birthday. And if I could hug you I would. EllieBC Jul 2020 #32
Hugs and prayers on their way to you, your mom, and your sister. pazzyanne Jul 2020 #33
Tell your mom happy birthday from me. FuzzyRabbit Jul 2020 #34
May all the blessings in The Universe come your way. I am sure they know how blessed they LoisB Jul 2020 #35
Thinking of you and how these times help build character grantcart Jul 2020 #36
May you find the strength to continue giving the care required. oasis Jul 2020 #37
You are doing the hardest job on earth and giving so much LiberalLoner Jul 2020 #38
Your long years of work, exhaustion and grief... ancianita Jul 2020 #41

lapfog_1

(29,243 posts)
1. hey... if you were near me I'd volunteer to
Thu Jul 16, 2020, 10:00 PM
Jul 2020

come over once a week to give you a break for a few hours.

guillaumeb

(42,641 posts)
3. Recommended.
Thu Jul 16, 2020, 10:06 PM
Jul 2020

My mother-in-law lived with us for 7 years.

Her last 2 were the hardest.

Healing thoughts to you, she. It is a hard job.

sheshe2

(84,031 posts)
5. The pandemic adds so much to the emotional stress.
Thu Jul 16, 2020, 10:11 PM
Jul 2020

My great niece turns one on the 26th. I held her twice and now have only seen her from a distance...she doesn't really know us.

Good on you and your wife for all those years of caring, guill.

Thank you.

guillaumeb

(42,641 posts)
10. How could it not add to the stress?
Thu Jul 16, 2020, 10:15 PM
Jul 2020

My new granddaughter is 3 weeks old today. We will see her for the first time Sunday.

Does your mother qualify for respite care?

sheshe2

(84,031 posts)
13. That is really covered under hospice.
Thu Jul 16, 2020, 10:21 PM
Jul 2020

With the pandemic we do not want many people here. Strange times.

Enjoy your visit with your granddaughter.

Phoenix61

(17,025 posts)
6. I was sort of there with my mom.
Thu Jul 16, 2020, 10:12 PM
Jul 2020

Everything revolved around her. She’s gone now but I feel so lucky that I was able to care for her. She had advanced Alzheimer’s and wasn’t sure who I was but there’s still a lot of good memories. Try and take care of yourself. I don’t know what I would have done without DU for company.

Ohiogal

(32,165 posts)
7. Caregiving
Thu Jul 16, 2020, 10:13 PM
Jul 2020

Has to be one of the hardest jobs in the world.

I remember hearing Hillary talking about her ideas to help caregivers. If only, if only....

Wishing you strength, sheshe2.


raccoon

(31,131 posts)
39. One thing that would help caregivers as a national health plan.
Fri Jul 17, 2020, 05:45 AM
Jul 2020

One thing that would help caregivers is a national health plan. Unless he or she is old enough for Medicare or is retired and has a health plan through their retirement, they’re screwn.

Ohiogal

(32,165 posts)
40. Yes, absolutely.
Fri Jul 17, 2020, 08:26 AM
Jul 2020

And perhaps some extra $ of some kind for caregivers to use for every day living expenses, since they are more than likely not earning a paycheck.

42bambi

(1,753 posts)
9. Bless you for caring so much, even as your own life is turned up side down, in the
Thu Jul 16, 2020, 10:14 PM
Jul 2020

end, you can look back and say that you did what your heart told you to do. Your Mom and sister are fortunate to have you.

sheshe2

(84,031 posts)
17. Thank you, Irisblue.
Thu Jul 16, 2020, 10:33 PM
Jul 2020

It wouldn't be so hard this go around if it weren't for the pandemic.

My sisters last surgery, we had HHS and another care giver that mom's insurance covered most of. She was here 8-10 hours a week. She did showers, lunch and laundry. I could go out, see friends, do chores and sleep!

Thanks, sweetie.

sprinkleeninow

(20,268 posts)
18. We experienced this in 2009. But not coupled with a pandemic.
Thu Jul 16, 2020, 10:42 PM
Jul 2020

You are all in my heart of hearts. 😔 💙

Marie Marie

(9,999 posts)
19. Bless you for filling a near impossible job. Caretaking is challenging in the best of times.
Thu Jul 16, 2020, 10:57 PM
Jul 2020

Don't know if this is helpful but a friend of mine took over as caretaker of his mother when she began her mental decline but still knew enough that she did not want to leave her home and he didn't have the heart to move her. He eventually had to but, in the meantime, they installed cameras in her house so that they could have the peace of mind of checking on her at all times. That carried them through until she needed to be placed under constant care.

Hope you take some time for yourself sheshe and please remember how many friends care about you here at DU.

imanamerican63

(13,835 posts)
20. My mother also took care of my 93 grandmother back in 2009 to 2013.
Thu Jul 16, 2020, 11:02 PM
Jul 2020

She finally called in a home care worker to help because my grandmother fell and broke her hip and wrist. I will have you in my prayers and I commend you for the tough job you and your sisters are doing.

Oh, and Happy 94th birthday to your mother too!

peggysue2

(10,849 posts)
23. Wow, sheshe
Thu Jul 16, 2020, 11:11 PM
Jul 2020

More power to you (for real).

I know how hard care-taking is from personal experience. You're right--hardest job around. I cared for my nearly grown son when he was brain injured through his recovery, rehab and eventual reentry into the world. My husband and I took care of his mother in her last two years.

But I never had two people to care for at once. Yikes!

Strange, too. My husband and I were just talking about his mother, how we would have handled things in a Covid-19 environment, how hard it would have been particularly at the end sans bather and the various nurses/therapists who came in for bi-weekly or weekly checks.

Think you're right about the nursing home environment. Someone with your mother's medical history would be very vulnerable and we know now of the many deaths linked to nursing homes across the country.

Take care of yourself as best you can, she. Happy birthday to your mom, too.

tiredtoo

(2,949 posts)
25. sheshe2
Thu Jul 16, 2020, 11:36 PM
Jul 2020

You are to be commended for what you are doing. She was there for your first breath and you will be there for her last breath. Such love and caring is exactly what we need more of in this world today.

Dem2theMax

(9,659 posts)
26. sheshe2,
Thu Jul 16, 2020, 11:37 PM
Jul 2020


I did what you are doing, and I know, boy do I know.
My mom made it to 94. Somehow that made this post of yours feel even more personal.

It's been eight years since Mom finally got to exit this world. I still have the baby monitor. And so many other things that helped me take care of her, and my dad.

As someone further up-thread said, I wish I could come and help you.

I remember it being the most stressful and exhausting time in my life. And I would have done it for 20 years more if that's what it took. I did it for seven years.
In addition to being stressful and exhausting, it was also the most love-filled and rewarding time of my life.
I cherish every minute I got to spend with my mom and dad.

Every time I thought I couldn't take another step, I would remember that it was all about love.

May that same love surround you and your mom and your sister.

From one daughter to another; one day at a time, one hour at a time, one minute at a time. And always remember to pat yourself on the back. Whether you believe in them or not, you are doing the work of angels.

cry baby

(6,682 posts)
27. What you're doing is the hardest job anyone could do.
Thu Jul 16, 2020, 11:42 PM
Jul 2020

I’m an only child and took care of my elderly parents for 10 years. Mom died in late March, just coming into the pandemic.

I feel your deep pain. It’s agonizing grieving before they go while they’re needing you so very much.

There is a group on Facebook, if you are so inclined. It’s a closed group so other family members can’t read there which gives complete freedom to vent. Wow, there is a lot of honest and even harsh venting. Everyone has their own life experience with this effort. Anyway, pm me if you want the name of the group. It really helped me not feel alone.

I’ll keep you in my thoughts. Take as much care of yourself that you can.

marieo1

(1,402 posts)
30. Prayers to all
Thu Jul 16, 2020, 11:48 PM
Jul 2020

sheshe2........prayers to you, your Mom and Sis, it's a dreadful time to be in your situation. Blessings to all of you.

dawg day

(7,947 posts)
31. Hugs-- and happy birthday to Mom.
Thu Jul 16, 2020, 11:50 PM
Jul 2020

I hope you hear good news about the hospice workers.
I wish Covid were over, so that you could get a break.

EllieBC

(3,049 posts)
32. Please tell her happy birthday. And if I could hug you I would.
Thu Jul 16, 2020, 11:50 PM
Jul 2020

Caring for elderly parents is hard enough but with the pandemic it’s been a source of major stress for many.

You’re amazing, sheshe.

pazzyanne

(6,560 posts)
33. Hugs and prayers on their way to you, your mom, and your sister.
Thu Jul 16, 2020, 11:55 PM
Jul 2020

Try hard to find ways to take care you within your hectic schedule. I know that is almost impossible, but it is necessary for you to stay healthy. Blessings on you, sheshe2!

FuzzyRabbit

(1,970 posts)
34. Tell your mom happy birthday from me.
Fri Jul 17, 2020, 12:01 AM
Jul 2020

And give your mom and yourself a hug from all of us. I would hug you both in person I could.

I know you will stay strong.

With love,
FuzzyRabbit

LoisB

(7,250 posts)
35. May all the blessings in The Universe come your way. I am sure they know how blessed they
Fri Jul 17, 2020, 12:24 AM
Jul 2020

Are to have you.

grantcart

(53,061 posts)
36. Thinking of you and how these times help build character
Fri Jul 17, 2020, 12:52 AM
Jul 2020

And right about know you are thinking "Lord I got more character than you can imagine so how about lightening up the load a bit"

I would call him myself but I seem to have misplaced the number. . .

Happy birthday to your Mom

Stay strong

LiberalLoner

(9,762 posts)
38. You are doing the hardest job on earth and giving so much
Fri Jul 17, 2020, 05:36 AM
Jul 2020

You are truly a hero. You have kept your mother alive and well. I admire you very much.
I hope your mother has a wonderful birthday.

ancianita

(36,212 posts)
41. Your long years of work, exhaustion and grief...
Fri Jul 17, 2020, 09:19 AM
Jul 2020

If you're not noble, I don't know who is.

May you keep showing your great love. At 94, that the best birthday gift your mom can feel.

May you get the help, relief and rest you need and deserve.





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